Clinical Practice Guidelines for Rare Diseases: development and quality assessment

corsi
Data: 9 Ottobre 2018 - 10 Ottobre 2018

Luogo: Istituto Superiore di Sanità Aula Marotta  |  Città: Roma

09-10 ottobre 2018
Corso internazionale “Healthcare Guideline for Rare Diseases: development and quality assessment”
Istituto Superiore di Sanità, Roma


Disponibile il programma preliminare
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09:00 Registration
09:30 Introduction to the course (D. Taruscio)
09:50 Clinical Practice Guidelines and European
Reference Networks (M. Scarpa)
10:15 Introduction to Clinical Practice Guidelines
development (P. Iannone)
10:45 Coffee-break
11:00 GRADE for Clinical Practice Guidelines
development in rare diseases (G. Filippini)
12:00 PART I- Assessing the quality of Clinical Practice
Guidelines: AGREE reporting checklist and AGREE II
(D. Coclite, A. Napoletano)
12:30 Lunch
13:15 Exercise in small groups: application of AGREE
instruments (D. Coclite, A. Napoletano)
16:00 Presentation of group works and feedback from
peers and tutors
17:00 End of the day

Second day
Wednesday October 10
09:00 PART II- The GRADE process: from defining the
question and collecting evidence to rating evidence
quality (G. Filippini, S. Minozzi)
11:00 Coffee-break
11:15 Exercise in small groups(G. Filippini, S.Minozzi)
12:40 Presentation of group works and feedback from
peers and tutors
13:00 Lunch
14:00 PART III- Evidence to decision framework
(S. Minozzi)
15:00 Future initiatives (D. Taruscio)
16:00 Discussion
17:00 End of the course

Speakers
Daniela Coclite - National Centre for Clinical Excellence,
Healthcare Quality and Safety, Istituto Superiore di Sanità,
Rome, Italy
Graziella Filippini - Foundation IRCCS Neurological Institute
Carlo Besta, Milan, Italy
Primiano Iannone - National Centre for Clinical Excellence,
Healthcare Quality and Safety, Istituto Superiore di Sanità,
Rome, Italy
Silvia Minozzi - Lazio Regional Health Service, Rome, Italy
Antonello Napoletano - National Centre for Clinical
Excellence, Healthcare Quality and Safety, Istituto
Superiore di Sanità, Rome, Italy
Maurizio Scarpa - Coordinator, European Reference Network
for Hereditary Metabolic Diseases (MetabERN), Padua,
Italy / Wiesbaden, Germany
Domenica Taruscio - National Centre for Rare Diseases,
Istituto Superiore di Sanità, Rome, Italy

GENERAL INFORMATION
How to apply
The online application form is available at:
https://it.surveymonkey.com/r/cpgRD2018
It should be duly filled by September 25, 2018.
Please note that places on the course are limited.
A maximum number of 30 participants will be admitted.
A confirmation of admittance will be sent by email only to the accepted applicants on September 27, 2018.
Accepted participants should come with their own laptop.
How much will it cost?
The course is available free of charge. The organizers will provide refreshments (tea, coffee and biscuits) and lunch but will not pay for travel and accommodation expenses of attendees.
Methods of Assessment
A pre-post test and a satisfaction questionnaire will be administered to the participants to assess changes in knowledge and to seek feedback on the perceived overall value and quality of delivery of the training. CME credits will not be assigned.

Course description
The course intends to promote guideline quality standards in rare diseases and to support the European Reference Networks in the development of their capacity to produce and assess clinical practice.
The course will provide participants with the skills necessary to develop and appraise clinical practices guidelines for rare diseases by using international methods and tools such as GRADE and AGREE.
By the end of the course participants will be able to:
- Describe the process of developing Clinical Practice Guidelines (CPG) for rare diseases;
- Use AGREE Instruments.
The course format consists of: lectures and small groups work/exercises.

Eligibility requirements
Participants will be identified through open application.
To apply for the course applicants should:
- be a graduate
- have experience in a health-related field
- have a good command of English
- be involved / interested in developing clinical
practice guidelines for reare diseases.
Applicants should meet theaboverequirements.
Applications will be reviewed to determine whether
applicants meet the eligibility requirements for admission.
A geographical distribution of the participants will also be taken into account in the selection process.
Priority will be done to ERN health professionals involved in developing and assessing clinical pratice guidelines

 

Course Directors
Domenica Taruscio
National Centre for Rare Diseases, Istituto Superiore di Sanità

Primiano Iannone
National Centre for Clinical Excellence, Healthcare Quality and
Safety, Istituto Superiore di Sanità

Tutors and Didactic Coordinator
Daniela Coclite, Antonello Napoletano
National Centre for Clinical Excellence, Healthcare Quality and
Safety, Istituto Superiore di Sanità
Graziella Filippini
Foundation IRCCS Neurological Institute Carlo Besta
Amalia Egle Gentile (didactic coordinator)
National Centre for Rare Diseases, Istituto Superiore di Sanità
Silvia Minozzi
Lazio Regional Health Service

Technical Secretariat
Daniela Bernardo, Giuseppe Bernardo, Patrizia Crialese,
Stefano Diemoz, Andrea Vittozzi
National Centre for Rare Diseases, Istituto Superiore di Sanità
Contact (Andrea Vittozzi)
e-mail: Questo indirizzo email è protetto dagli spambots. È necessario abilitare JavaScript per vederlo.
phone: (+39) 06 4990 4418

Venue
Istituto Superiore di Sanità
Aula Marotta
Viale Regina Elena, 299 00161 Rome
(Italy)
Map of the venue:
http://tinyurl.com/y7k2xj4n

For more information visit:
www.iss.it/cnmr
Clinical Practice
Guidelines
for Rare Diseases:
development and
quality assessment
October 9-10, 2018

Scientific Secretariat
Daniela Coclite, Antonello Napoletano
National Centre for Clinical Excellence, Healthcare Quality
and Safety, Istituto Superiore di Sanità
Linda Agresta
National Centre for Rare Diseases, Istituto Superiore di Sanità

 

 

Luogo
Viale Regina Elena, 299, 00161 Roma RM

 

Google Maps


 

Altre date


  • Da 9 Ottobre 2018 a 10 Ottobre 2018

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