EMM 2017 BUDAPEST

Categoria
meeting
Data
18 Maggio 2017 13:00 - 19 Maggio 2017 14:00
Luogo
Danubius Hotel HELIA, Budapest, Hungary - Budapest, Kárpát u. 62-64

EMM 2017 BUDAPEST DR AFT AGENDA

18  May 2017

14.00 - 18.00 ePAG representatives meeting & Leadership workshop

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14.15-14.45 Session 1 ‘Ice Breaker’

14.45–15.30 Session 2 ‘Towards cross ePAG cooperation’

15.30–6.00 Coffee break

16.00-17.00 Session 3 ‘Exploring best practices of ePAG representatives in ERNs’

17.00–18.00 Panel discussion

09.30-18.00 Council of National Alliances(CNA) meeting

(Closed meeting, on invitation only, contact Questo indirizzo email è protetto dagli spambots. È necessario abilitare JavaScript per vederlo.)

 

Friday 19 May

09.00 - 13.00 EURORDIS

General Assembly (EURORDIS Members only)

Business agenda

Election of four Board members

Discussion: Towards a second Council Recommendation (tbc

 

EMM 2017 Plenary: EURORIDS 20 years’ anniversary Plenary: Building on success of 20 years of advocacy for rare disease

EURORDIS’ members can look back on 20 years of advocacy, all together within the rare

disease community, which has brought many positive changes. In this plenary session, we

will discuss in three panels what have been the key success factors, our strengths and

weaknesses, how we can build on these successes while addressing the challenges ahead.

14.30-14.40Opening remarks, Terkel Andersen, President

14.40-15.00Interactive welcome , Claudia Crocione, HHT Europe

15.00-15.50I Building an empowered and engaged community of patient advocates

 

 
 

Altre date

  • Da 18 Maggio 2017 13:00 a 19 Maggio 2017 14:00

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