The Fourth Italian EndoERN Meeting MTG Peer Endo-ERN Italian-European Groups 7th June 2018

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Data: 7 Giugno 2018 08:00 - 17:00

Luogo:  Palazzo della Salute  |  Città: Padova

The Fourth Italian EndoERN Meeting
MTG Peer Endo-ERN
Italian-European Groups
7th June 2018
Palazzo della Salute, via San Francesco 90, Padova

Local Scientific Committee:
Nella Augusta Greggio, Carla Scaroni, Roberto Vettor, Valentina Camozzi, Filippo Ceccato, Maurizio Iacobone, Pietro Maffei, Monica Mazzucato, Caterina Mian

Scientific Rationale
ERN network aims to improve access to high-quality healthcare for patients with hormonal disorders and to deliver improved diagnostic trajectories, treatment, quality of care and measurable outcome for patients with rare endocrine conditions.
Endo-ERN has established eight main thematic groups covering the full spectrum of congenital and acquired conditions. These are: adrenal disorders; disorders of calcium and phosphate homeostasis; disorders of sex development and maturation; genetic disorders of glucose and insulin homeostasis; genetic endocrine tumour syndromes; disorders 
of growth and genetic obesity syndromes; pituitary disorders; and thyroid disorders. 
The aim of the meeting is to bring together Italian, European MTG coordinators and the Italian ePAG to list questions pointing towards research needs and new management avenues opened by translation of research in diagnostics and treatment of rare endocrine conditions.

PROGRAMMMA

8.00 Registration of participants
8.45 Greetings & Introduction
Nella Augusta Greggio AOU Padua, (Italian National Coordinator - SIEDP)
Annamaria Colao AOU “Federico II”, Naples, Italy,
(Italian National Coordinator - SIE)
Luciano Flor & Carla Scaroni, HCP Representative / EndoERN HCP
Representative of Padua
Paola Facchin, Regional Registry Coordinator for Rare Diseases -
Regione del Veneto, Italy
9.20 The commitment of the Italian National Institute of Health (Istituto Superiore di Sanità, ISS)
Domenica Taruscio, Director of the National Center for Rare Diseases &
Co-Coordinator of the WP “E-health & ICT, ISS,Rome, Italy
Role of the National Center for Rare Diseases 
Primiano Iannone, Director of the National Center for Clinical Excellence,
Quality and Safety of Care, ISS, Roma, Italy
Clinical practice guideline
10.00 MGT1: Adrenal. What to do on diagnosis and targeted medical therapy.
Svetlana Lajic, Karolinska University Hospital Stockholm, Sweden
10.20 MGT2: Disorders of Calcium & Phosphate homeostasis.
PTH and phosphate dependent diseases, what to do?
Lars Rejnmark, Aarhus University Hospital, Aarhus, Denmark
10.40 MGT3: Genetic disorders of glucose & insulin homeostasis.
Tailored pharmacologic treatment and modern, evidence-based care through a multidisciplinary approach
Thomas Danne, Kinderkrankenhaus auf der Bult, Hannover, Germany
11.00 Coffee Break
11.40 MGT4: Genetic endocrine tumor syndromes.
What to do regarding the optimal timing and method of treatment 
Atilla Patocs Semmelweis University - Budapest, Hungary
12.00 MGT5: Growth & Genetic obesity syndromes. What to do for improving clinical, molecular diagnosis and personalised therapy.
Irene Netchine CHU Paris Est – Hôpital d’Enfants Armand-Trousseau
Paris, France
12.20 MGT6: Pituitary. What to do on diagnostics, interventions and tailored pharmacologic treatment.
Annamaria Colao AOU “Federico II”, Naples, Italy,
(Italian National Coordinator - SIE)
12.40 MGT7: Sex development (DSD) & maturation (DSM).
What to do on diagnostic and targeted medical therapy.
Luca Persani IRCCS Istituto Auxologico Italiano - Milano, Italy
13.00 MGT8: Thyroid. Diagnostic strategies and treatment approaches (i.e liquid formula vs tablets)
Robin Peeters Erasmus MC - Rotterdam, The Netherlands
13.30 - 15.30 Lunch Working Groups
15.30 ePAG. Italian Endo-ERN ePAG’s representatives experience.
16.00 General Assembly of Italian Endocrine Centers
16.30 - 17.00 Closing remarks and ECM Questionnaire

Modalità d’iscrizione: il corso è gratuito con iscrizione obbligatoria attraverso la seguente mail: Questo indirizzo email è protetto dagli spambots. È necessario abilitare JavaScript per vederlo. e riservato a n. 80 partecipanti per le seguenti figure professionali: Medico Chirurgo (tutte le discipline), Biologo. 
ECM: Ai fini dell’attestazione dei crediti ECM è necessaria a presenza effettiva degli iscritti al 100% dell’intera durata dell’attività formativa, con verifica tramite firma di frequenza in entrata e in uscita, la compilazione e restituzione della scheda di valutazione/gradimento, della scheda anagrafica e del questionario ECM di apprendimento alla fine del corso.

Crediti ECM assegnati: n. 7
Provider Ministeriale Nazionale id. 1884 - Dipartimento di Medicina - DIMED
Via N. Giustiniani, 6 - Palasanità – Stanza n. 46 - 35142 Padova
Tel. 049/821.8689 fax. 049 821.1255 Questo indirizzo email è protetto dagli spambots. È necessario abilitare JavaScript per vederlo.

 

Telefono
Tel. 049/821.8689 fax. 049 821.1255
Email
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Luogo
Via S. Francesco, 90, 35121 Padova PD

 

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  • 7 Giugno 2018 08:00 - 17:00

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